Friday, June 29, 2012

End of week two!
Yo. I have not had internet at the new ronald mcdonald place yet :/ so i have a lot to write but probably not all will be written i am exhausted!
I ran today, 2 minutes on the treadmil! ahhhh boy did i get it. But it was good. And i talked to one of the physical therapists said she is not a huge fan of the treadmil  to work on gate pattern. I agreed so she offered to take my out to the board walk right by the lake and run with me for p.t. sessions. I am really pumped to do that!
... I feel very out of it so i am sorry if there are parts that one cannot comprehend.
So tuesday I moved into the new Ronald Mcdonald House in Chicago. It is amazing!
This bellow is one of the murials that's one the roof top. It has an amazing few. 
This picture bellow is the meaditation room. it's wonderful. I often have been going in there to do my biofeedback and relaxation.

Below shows the sounds of love. All the dots on the ground make noises and are a huge hit.

This is the layout of the quiet garden roof top. So beautiful!!


Monday, June 25, 2012

Monday of week 2



Hola! Day 1 of week 2! woaw. Today was good but not...I did a lot more. it was a busy day & my pain didn't increase as much as it would have in the past. But by taking the long way back it was just a bit too much. I got a migrane as well. But i rested some and keeping good spirits, so it's all good.



Tomorrow's schedule will be easier. but today i had OT, PT, therapy, conditioning at gym and aqua therapy. They definitely kept me moving. I did the bike today for 20 minutes, my legs felt like jello afterward but it was great to be moving! I got my heart rate up to 163! yayy. I had to go down right after i reached 163 but i can say i got to it hahah.

God is wonderful, I look around at the people i am with at this program and my ohh so amazing mother and cannot help but see the loving and good things God gives. Like Kevin for example, he is in my RIC group. Sweetest man i've ever met and despite his pain always praises the Lord. He is such a role model to me with how he tells the truth but is still such a sweet guy & does not feel the need to focus on his pain. Love him! And everyone else in my program with me, he is just one of the examples.

I also met 29 year old today who also has Complex regional pain syndrome. It was so nice to talk to her. I always love meeting the people who know exactly what it's like. She was such a sweet heart. She is from Charlottle, NC, where my bestie lives ;) She, like me has also had CRPS for 3 years. We talked for a while just about treatments and how they've spread ( we both have had it start on our leg and has moved all the way up our bodies to the neck). She has it on her right side, and mines my left so we decided we can become one whole unbroken person if you put us together haha

Migrane is still prevalent, i'm gonna bounce.
Peace,
Erin